Engaging Diverse Voices to Improve Cancer Diagnosis Experiences
About the Project
Many Ontarians face significant delays between the onset of cancer symptoms to diagnosis and treatment, with structurally marginalised communities facing the greatest barriers to care and poorer health outcomes. To address these inequities, Ontario Health (Cancer Care Ontario) sought to redesign diagnostic pathways with a focus on equity. While their Patient and Family Advisors (PFA) community provides meaningful insights in patient health experiences, it remains under-representative of high priority populations, including Indigenous, Francophone, newcomer, 2SLGBTQI+, rural/remote, racialised, low-income, and people living with disabilities. There was an identified need to capture diverse lived experiences to inform equitable, inclusive, and responsive cancer diagnostic services for all Ontarians. The Engaging Diverse Voices to Improve Cancer Diagnosis Project (Project EDV) focused on engaging three high priority communities: Black, Newcomer and Francophone and French-speakers.
The purpose of the project was to:
Understand the lived experiences and needs of individuals from three high-priority populations related to the cancer diagnostic phase, and
Develop an equity-oriented model for engaging structurally marginalised communities within Ontario Health (Cancer Care Ontario)’s PFA community.
Knowledge Products
Media and Engagement
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August 2024 - August 2025
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Dr. Ibukun Abejirinde, Project Lead, Institute for Better Health, Trillium Health Partners
Nuzha Hafleen, Research Associate, Institute for Better Health, Trillium Health Partners
Isabelle Choon, Research Associate, Institute for Better Health, Trillium Health Partners
Asli Hersi, Research Assistant, Institute for Better Health, Trillium Health Partners
Meghan Perrin, Bilingual Facilitator
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For more information about this project contact: info@moonshotcollaborative.ca
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Newman E, Abejirinde IO, Hafleen N, Choon-Kon-Yune I, Hersi A, Nemariam S, Jia A, Pardhan A, Redwood E. (May 2025). Promoting Equity in Cancer Diagnosis at a Systems Level: Knowledge User Perspectives from the 'Engaging Diverse Voices' Initiative. [Poster presentation]. Canadian Association for Health Services and Policy Research Conference, Ottawa, Canada.
Funders